Aidpage

 in response to khogan1960...   Who are the angry uninsured? http://www.luvpower.org/about.html

 in response to khogan1960...   You are welcome!!

 in response to Starshine...   Thanks for the information.

 in response to khogan1960...   

No problem with what was said to Ralph that is in the Past!! Yes he hasn't been on line but did see him on another site for a minute but I was busy trying to do my calls. A suggestion with Wauh is when you log into WUAH  put your link here -I don't know if you know how to do that and I have to look up my password they gave me to log in

http://www.wishuponahero.com/wishes/?id=609739

http://www.wishuponahero.com/wishes/?id=625189

 These are your two links to your current wishes at WUAH..

I hope this helps you and it is easy to copy your links 

highlight left click right click copy on yr mouse, right click paste to where u  want it then run the cursor with yr mouse over to highlight it go next to insert picture put it in insert link and do that hit summit and you have a clickable link

good luck and you can do that same procedure if you have gmail easy to use and send it to people you know but there are a lot of people at WUAH who will see it - lot of good people there as well as here..

Starshine

 in response to Starshine...   It is so sad that there is so much pain and suffering in this world.  Thank you for forgiving me for my sarcastic remarks I made to Ralph that day.  He is a really good guy just trying to keep going like the rest of us.  One thing I found out this week is that there is no charity healthcare in Birmingham, AL.  My son saw a gastroenterologist Monday (5/24/2010) and I had to pay $35.00.  He saw a podiatrist on Tuesday (5/25/2010) and I had to pay $60.00.  He underwent a colonoscopy today Thursday (5/27/2010) and I had to pay $35.00.  The doctor said they saw no obvious bleeding in his colon and they did do biopsies and the results of the biopsies will not be ready until 7-10 days.  All these things were done at the University of Alabama at Birmingham which charity care there used to mean you paid $0.  I know in the big world of medicine these fees are very minimal to them but they are devastating when you are using your rent and utility bill money to pay for these things.  These expenses also do not include the previous two doctor visits and almost $200.00 paid for medications two weeks ago.  I have posted a wish on the "Wish Upon a Hero" website under the user name raggedjean5.  I am asking for donations to recover some of this money so I can pay rent and utilities.  If anyone knows of anybody who can help, please ask them to go to that web page. I will do anything to make sure my son gets the healthcare he needs, even if I have to stand on the side of the road and beg for help. Thank you.

 in response to khogan1960...   

Thank you it happened about 10 yrs ago but I still remember how she passed on. The tumor it bloated her face. I know exactly what it did to her.

Yes doctors can be human and make life threatening errors. my own skin cancer dr. I had to point out about the little spots and they were basal skin cancers. I am fairskinned and worked hard for the little tan I could get when I was 29.  My skin dr. ignored contact dermatis where i got the leg ulcer it drained for one month and he just said not diabtic not looking at my leg till the following month when I saw him and said I want you to look. He freaked and wanted me on cortizone shots and creme. I was using homeopathy and spent years getting thru panic attacks and I was not about to anitdote it. He was afraid I lose my leg. I was pissed. I took the creme after screaming at him unfortunately the waiting room was full and came back 3 days later and it was healed. I had heavy telpah pads and in 40 minutes I had to change the dressing.

You have to be your own advocate when it comes to your health and better be it in the hospital know what you are taking and why and when..Ask questions. 

I have a dr. who isn't out for the money as he has given me his free visits and others at his office. 

I am sorry for what you are going through and read a little about you but it was mostly your son who you were concerned with and when it comes health matters stress is overwhelming;

Another here who is sick and young one of our long time members had the same reaction from another which hurt her. 

RALPH7 is a good man who wants so much to do more than MS and other problems let him do. He is always gentle and kind wanting to help people. I stood up for him that day. He can take care of himself but I had to say something. I don't know if that was the best way rather sent a one to one.  I am quilty to sometimes don't see all of ones post about what else is going on with them besides who they are crying out for help for.. 

I had to take care of my mom when she had cancer lung, and deal with my sister and her hubby who was ok but I wasn't in love with him. So I know all too well about stress and trying to take care of someone. I didn't have cancer but trips for skin cancer removal Mohs surgery while trying to be there for mom taking care of bills, yard and then stay at the hospital. I would come at night and cry like a baby to my friends. Or cry alone. 

I am really sorry that you have to go through what you do with you cancer and it is hard. You are a fighter trying to help you and your son. Do check out cleaningforareason.org as they will help you with house work a maid comes in for women undergoing any type of cancer treatment. 

Don't worry about what you said to Ralph all is in the past and time to move on and he has become a great friend to you. YOu have a friend here with me and I am sure others at aidpage will feel the same. 

I pray that soon someone finds a way to heal those with cancer and other illness. Then to learn how to catch these diseases like cancer early..

God Bless and I wish you and your family the best..

Starshine

 in response to Starshine...   I am so sorry about your girlfriend's daughter.  It is so sad that with the test that would have detected her problem earlier was not done (as they did not do a CT scan).  I have a weakened immune system because of the mesh.  I break out in shingles when I get upset which is often lately in trying to find care for my son.  I developed a staph infection in 11/2009 and had to stay in the hospital for 7 days with them hanging bottles of antibiotics continuosly with the IV and sometimes it would be 3 different antibiotics at one time because they said if the infection got into the mesh, I would not live.  I have had doctors look at me in disbelief not understanding how I am still alive.  I joke with them that "I am just too stupid to die".  There should be someway and I don't know how right now that would make doctors sit up and care and at least run a test.  They seem to all be in it for the money and I hope God finds a doctor for my son before it is too late.  The doctors said that the tumor I had was composed of "tentacles" that were wrapped around the parts of my body they had to remove.  They said chemo and radiation usually did not help with that type tumor.  I may possibly have a recurrence in my right chest wall right now, but if I do, the doctors say they will not be able to do anything.  During the night, I feel a squeezing in my chest and think I am dreaming but wake up and the squeezing is there and I have to take some pain medicine and hope I can lay back down.  I have spent many nights sitting in a recliner crying and praying.  I will check out your blog.  I know you were upset about my response to Ralph and I apologize.  I was just stressed out and trying to take care of other people when I am sick too. 

 in response to khogan1960...   

Hi

I am reading your story more about your son and then about your cancer where the doctors didn't catch it for two years. I had a girlfriend who had a daughter. Her daughter kept complaining of chest pain for two years. They told her anxiety. It was too late when an HMO caught it as she had a tumor in her chest. They couldn't operate on it or do anything for her. Her mom did bring a lawsuit against the place and won but it never brought her daughter back. 

I feel sorry that your cancer wasn't caught in time and there is a service if you are undergoing treatments for cancer that is in my blog called cleaningforareason.org

Best to you 

Starshine

 in response to RALPH7...   God bless you

 in response to khogan1960...   Thank  you for for being concerned & she was in the last stage with no chance of sur viving a other surgey& we hAD she was rhere I misss her cause i loved her so much.she waso much in pain meds she died.She was in her pillow all purple It was so hard.W had so much fun togeter,she did love ne.I t is so sad that peole have to suffer. am really having alot of trouble right now I have to go I'm sorry.I hope i don't have to go to the hospital.I wish you the best & i will look up the help for you. God Bless You

 in response to RALPH7...   Again, I would like to apologize for my earlier comments.  I am just so upset and I don't know what to do.  He is my child.  He looks to me to help him when he is sick.  He is asleep right now and I am waiting to see when he wakes up if we will be spending another night or day in the emergency room.  Any information or help will be greatly appreciated.  I am missing four ribs, part of my left lung, part of my sternum, 22cm of tissue and muscle in my chest wall and reconstruction of my diaphragm because no doctor would even suggest doing a CT scan when I complained that I could not breathe when I laid down.  I spent two years of rolling in the floor in pain and trying to prop myself up on the couch to sleep a few hours so I could work a fulltime job and take care of my children.  They packed 22cm of Gore-Tex mesh in my chest wall to protect my heart and what was left of my left lung.  I have no support in my chest wall and I fall alot because the missing ribs on my left side are causing my right side to become abnormal.  It is very painful but I thank God for letting me be here for my son.  I am very sorry about your friend passing away.  I hate to ask you this question, but I need to know, what stage of Crohn's was she in and what was the cause of her passing away.  If I can help you with your new non-profit, please let me know.  God bless you also.

 in response to khogan1960...   I do know how it is seeing that with Chrohn's Disease & how they treat you cause I have been in the hospital with my roommate a few times.I even cared so much to stay with her for five days straight & thought she was going to die then & beleive me I cried.When she passed away Dec. 20th,2009 I went to try to revive her but she was already gone.I was then air evacted to las vegas & since I have been on betaseron stress is the worst cause it puts it into severe mode.I have lived with MS since 1994 but didn't get diagnosed until 2008.I have had many struggles & with having MS some people can be of risk of getting Chrohn's Disease besides.I happened to be one of those at risk.One of the reasons is because of problems with bladder & bowels.I have had bladder surgery & prostate surgery.I nearly lost my testicles & nearly died cause I was told that if I waited one more day I would of been gone.My white blood count was climbing very rapidly & had to go for IV treatments for seven days & then had to have a home nurse.My disease is Chronic but I work in doing the best i can & have come along way.I am experiencing many problems now but still am going to push for a new non-profit.I want to tell you though it maybe for MS but some of the treatments also work for Chrohn's & will have them accepted also.The organization that I wish to accomplish will be great cause I will be doing alot of research & will have others that will help me.My fiance' is very smart & when i am unable to do thing she will be my back bone.I am having many people who are behind me & I won't stop & also want it carried on when I pass.If you want I can find out where you may get alittle bit more help thru the organization for Chrohn's they may even be able to intervene.God Bless You

 in response to RALPH7...   I have watched my son suffer for eight weeks straight and I take him to the emergency room and all they do is give him IV fluids and pain medication in the IV and then send him home.  They have not even done a colonoscopy to try and see what is going on.  I did not purposely want to hurt anyone's feelings, but after our experience at a clinic that the doctor in the emergency room assured us would him, I have went from crying to just mad because I do not understand why these doctors are treating him like this.  I have three children and Zach is the sweetest, most loving of all three.  I am disabled due to cancer and I am in the situation I am in because the doctors did not diagnose the cancer until two years after I kept going to the doctor not feeling right and they made me feel like I was crazy everytime I went to the doctor because they said all I had was acid reflux.  I don't want my son to die.  One emergency room even said they did not treat Crohn's Disease in the emergency room because it is a "chronic" disease.  I know it is chronic, but when he cannot eat and is in pain that makes him cry, I don't consider those symptoms as being chronic.  PLEASE RALPH, ACCEPT MY APOLOGY.  I WAS OUT OF LINE.  I WOULD ALSO LIKE TO APOLOGIZE TO EVERY MEMBER OF AIDPAGE.

 in response to khogan1960...   I try to help more people than you know & being sarcastic is going to get you nowhere.Their are many people who have said things just to get something.People here just try to be careful.If I wasn't a caring person I wouldn't be looking to get a non-profit together for MS which I have been living with since 1994.I do know what Chrohn's is my roommate died from it.I am unable to help anyone financially now,but would if I could.In order to protect yourself too you shouldn't be putting your social security number on here or your address.Your credit could be ruined.I did let you know that there is an organization for people with Chrohn's.A few years ago it only existed in the UK but now is in the US.I went to check this out because of my roommate.I'm not here to criticise,I've only been here to help people.

 in response to khogan1960...   Hi I am at lost what to say..But I will say this look at RALPH7 profile and blog, he has MS and other problems and suffers daily. Thank you for reading his status....

 in response to RALPH7...   Glad you have the time, health and mentality to criticize someone instead of trying to help someone.

 in response to RALPH7...   Thanks to all of you who are more concerned about a date than about the truth about someone so young who has suffered more than any of you will suffer in your lifetime.  Yes, it was a typographical error - the year should have read 2006.  Now, spend your time trying to help someone instead of being critical about a typographical error.  Thank you so much for your care and concern (very sarcastic remark!!!!!)

 in response to ...   I think it was 2006 and a typo...I hope!

 in response to khogan1960...   Please take down his SS# - and don't post such personal info anywhere online unless it is a secure site!

 in response to khogan1960...   This story doesn't go together,unconsistant.There is no way he is 22 according to him in college in 1986.Makes no sense the way this is written.We were at the school on the evening of 2/8/2005 to perform in a band concert. My mother was sick and could not go. I was 16 years old and driving at that time.Now it goes to here :I got all my schoolwork done and graduated with my senior class of 1986. I auditioned for the band director at UAB and received a scholarship to march with the UAB Marching Blazers. My plan was to major in computer science and minor in music. I then wanted to pursue becoming a youth minister. Things at college were great from August, 1986 thru December, 1986.